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Town Meetings Town Meetings are carefully organized to deliver information to multiple myeloma patients, caregivers, and supporters. Join us for a 90 minute session presented by a multiple myeloma specialist to discuss the following topics:
 
   
• Diagnosis and management of multiple myeloma
• Current and upcoming treatment protocols
• Information about navigating financial resources & other patient services
• The Ohio Myeloma Initiative
   
Houston Town Meeting
 
The Town Meeting in Houston, TX at M.D. Anderson Cancer Center welcomed over 180 patients and caregivers to meet and discuss issues surrounding myeloma with Dr. Robert Orlowski (M.D. Anderson) and Dr. Thomas Martin (UCSF Helen Diller Family Comprehensive Cancer Center San Francisco, California).
Our expert panel, including two renowned myeloma specialists, social workers and patients addressed questions throughout the program.
Videos produced by:
Patient Power
 
How is Myeloma Diagnosed?
video Robert Orlowski, PhD, MD
How is Myeloma Diagnosed?
Dr. Robert Orlowski, from MD Anderson Cancer Center, discusses a variety of tools used in diagnosing myeloma. Dr. Orlowski explores symptoms of the disease that are utilized in diagnosis — including anemia, bone fractures, bacterial infections — and how symptoms may differ among patients. He explains initial diagnosis of myeloma through a blood test known as serum protein electrophoresis (SPEP) and via urine collection, X-ray and patient intuition. Dr. Orlowski explains that myeloma is not easily detected through routine physicals; therefore he feels that it is important for patients to be vocal about their concerns.
Treatment Strategies for Managing the Side Effects of Cancer Treatment
video Robert Orlowski, PhD, MD
Treatment Strategies for Managing the Side Effects of Cancer Treatment
With cancer treatment, side effects are almost inevitable. Patient Power founder and host, Andrew Schorr, poses a question: how do we best manage side effects of treatment? Dr. Orlowski emphasizes that communicating symptoms with your healthcare team is key to making sure the side effects aren’t a result of other health concerns. UCSF myeloma expert, Dr. Thomas Martin, gives us a clear picture on a new line of next-generation proteasome inhibitors and monoclonal antibodies in which we may see very little to almost no neuropathy. Dr. Martin also explores drugs coming down the pike and other treatment strategies.
Deciding on a Multiple Myeloma Treatment Regimen
video Thomas Martin, MD
Deciding on a Multiple Myeloma Treatment Regimen
Dr. Thomas Martin, director of the Myeloma Institute at UCSF Medical Center, explores how various therapies are chosen for the treatment of multiple myeloma. Dr. Martin begins by discussing how myeloma progresses and also explains the clinical manifestations of myeloma known as CRAB (elevated calcium, renal insufficiency, anemia, and bone lesions), which helps experts to evaluate whether the disease is transforming beyond watch and wait. Dr. Martin makes it clear that each therapy approach — whether it is a stem-cell transplant or maintenance therapy — is based on personalized care.
Maintenance Therapy in Myeloma: When is It Recommended?
video Robert Orlowski, PhD, MD
Thomas Martin, MD

Maintenance Therapy in Myeloma: When is It Recommended?
Who needs maintenance therapy and when? Dr. Thomas Martin, from UCSF Medical Center, explains the results of several maintenance therapy clinical trials in both the US and abroad. Dr. Martin talks about what these results mean for overall survival and current recommendations for maintenance therapy, post-transplant. Dr. Robert Orlowski, from MD Anderson Cancer Center, shares his enthusiasm for “pushing the envelope” in maintenance therapy pre-and post-transplant with combination therapy — by combining immunomodulatory drugs (IMiDs) and proteasome inhibitors (PIs) — in the hopes that the drugs will prolong relapse time and potentially cure the myeloma.
Serum Free Light-Chain and Bone Marrow Biopsy in Myeloma
video Thomas Martin, MD
Serum Free Light-Chain and Bone Marrow Biopsy in Myeloma
A patient poses a question about whether a bone biopsy is the only way to examine whether the cancer is “diminishing” when it’s light-chain only. Dr. Thomas Martin, a myeloma expert from UCSF, talks about the serum-free light-chain test and what this means for estimating the path of the disease.
Brianna Garrison, MSW, LMSW
video Brianna Garrison, MSW, LMSW
Setting Achievable Goals During Your Cancer Journey
Setting and maintaining goals while living with cancer can prove to be challenging. Brianna Garrison, a social worker at MD Anderson Cancer Center, shares her advice for setting small, realistic goals. Brianna emphasizes why she feels it is important to focus on “doing the things you can do" during your cancer journey.
Asking for Help During Cancer Treatment
video Paul Rabuck, Brianna Garrison, MSW, LMSW
Asking for Help During Cancer Treatment
With cancer, patients can feel good one day and bad the next day. Patient advocate Paul Rabuck and social work counselor, Brianna Garrison share personal experiences and give sound advice on the best ways to ask for help during cancer treatment.
Asking for Help During Cancer Treatment
video Thomas Martin, MD
Understanding Treatment Recommendations for Myeloma Patients in Deep Remission
What are the recommendations for treatment-free patients in deep remission? A patient poses such a question to Dr. Thomas Martin, associate director of the Myeloma Institute at UCSF Medical Center. Dr. Martin discusses maintenance therapy and which patients might be the best candidates at various stages of remission. He also explores "watch and wait" in helping to decide when to initiate therapy.
Robert Orlowski, PhD, MD
video Robert Orlowski, PhD, MD
Is Refractory Myeloma a Life Sentence?
Is it possible to reuse drugs that have already been explored after myeloma becomes refractory? Dr. Robert Orlowski of MD Anderson Cancer Center, answers specific questions related to refractory myeloma and drugs that may be used in a various combinations after the myeloma has progressed.
Brianna Garrison, MSW, LMSW
video Brianna Garrison, MSW, LMSW
Spotting Depression During Cancer Treatment
Life with cancer is frequently accompanied with bouts of depression, but how do you spot depression among many symptoms? Brianna Garrison, an MD Anderson Cancer Center social worker counselor, shares key advice about how to best communicate symptoms and avoid being overwhelmed.
Thomas Martin, MD
Robert Orlowski, PhD, MD
video Thomas Martin, MD
Robert Orlowski, PhD, MD
How to Be an Active Member of Your Healthcare Team
Renowned myeloma experts, Drs. Thomas Martin of UCSF and Robert Orlowski of MD Anderson Cancer Center, discuss treatment compliance and the importance of patients speaking up and communicating how they’re feeling during treatment.
Robert Orlowski, PhD, MD
video Robert Orlowski, PhD, MD
Improving Outcomes in Newly Diagnosed and Relapsed Myeloma Patients
MD Anderson Myeloma expert, Dr. Robert Orlowski, discusses improving outcomes in myeloma by using “the best drugs” earlier in treatment.

 

Eunice Marks
video Eunice Marks
Eunice Marks: How Being Diagnosed with Myeloma Made Her a Kinder Person and Brought Her Family Closer
Being diagnosed with cancer is devastating -- could there really be a bright side? Myeloma patient Eunice Marks and her sister Hannah Washington talk about how myeloma changed them and brought their family together.
Paul Rabuck
video Paul Rabuck
Paul Rabuck: Why I Moved Halfway Around the World to Fight Myeloma
Patient advocate Paul Rabuck talks about why he moved his family from China to Houston in order to be treated at MD Anderson. Hear his thoughts on the importance of a comprehensive and specialized care team.
Robert Orlowski, PhD, MD
video Robert Orlowski, PhD, MD
Novel Myeloma Drugs Revolutionize Treatment Options
With new single agents and combinations, myeloma patients now have more treatment options to choose from than ever before. Dr. Robert Orlowski discusses the recent strides made and the hope he has for the future.
Thomas Martin, MD
video Thomas Martin, MD
The Future of Transplants in Myeloma
With several new myeloma treatments available, will transplants still play a role? Dr. Thomas Martin shares his thoughts on how new treatment options affect the future of transplantation.
Brianna Garrison, MSW, LMSW
video Brianna Garrison, MSW, LMSW
Brianna Garrison: A Social Worker's Advice for Coping with Myeloma
Brianna Garrison, an MD Anderson social worker who specializes in working with myeloma patients, talks about strategies for coping with both physical and emotional sides of the disease.
Treatment Response Rates Following a Myeloma Relapse
video Robert Orlowski, PhD, MD
Treatment Response Rates Following a Myeloma Relapse
Will certain myeloma drugs respond well if used again for relapse? A patient poses a question about relapse and whether Lenalidomide (Revlimid), bortezomib (Velcade) and dexamethasonealone (Decadron) in combination can be used to retreat myeloma. Myeloma expert Dr. Robert Orlowski answers by talking about various studies and examples of patients who responded favorably to Velcade as a stand-alone therapy, then did well when retreated with Velcade once again. Dr. Orlowski speaks about the potential response from the retreatment with various agents, but also points to the potential for resistance
Could Drugs Replace Transplant in Myeloma?
video Thomas Martin, MD
Robert Orlowski, PhD, MD
Could Drugs Replace Transplant in Myeloma?
Dr. Thomas Martin, from UCSF Medical Center, discusses what research is revealing about the role of transplant in treating myeloma. Dr. Martin also weighs in on molecular tools and technology that are becoming available to better detect remission levels. Dr. Robert Orlowski joins the discussion by sharing how the transplant process is carried out at his center, which focuses on better outcomes and improved quality of life.
Is There a Cure in Sight for Myeloma Patients?
video Robert Orlowski, PhD, MD
Is There a Cure in Sight for Myeloma Patients?
s there a disease-free or cured myeloma patient? Dr. Robert Orlowski talks about a handful of patients in the post-transplant setting, who are doing well and achieving, then sustaining, a complete remission. While Dr. Orlowski is hesitant to use the word “cure,” he feels optimistic that with current therapies, a fraction of patients may actually be cured in the near future.
Columbus Town Meeting
 
Myeloma patients and caregivers came together at a Town Meeting in Columbus, Ohio where they learned more about the latest myeloma news, treatment planning, strategies for managing side effects and more about how to live well with myeloma.
Our expert panel, including two renowned myeloma specialists, took your questions throughout the program. Local advocacy groups were on hand to offer support and help patients connect with the myeloma community.
Videos
produced by:
Patient Power
 
Heathly, Happy and Focused Living
video Sarah Kaufmann-Fink
Happy, Healthy and Focused on Living Life
Hear from Sarah Kaufmann-Fink about being diagnosed with Multiple Myeloma at 22 years old. Sarah talks about how being diagnosed with a serious condition helped to frame the way she chooses to live her life moving forward, her priorities and even influenced her career path.
Living with Myeloma as a Young Couple
video Matt and Kate Hare
Living with Myeloma as a Young Couple
Matthew and his wife Kate openly discuss how they keep a positive attitude by making sure cancer doesn't run their lives. They starting dating shortly after Matthew was diagnosed with myeloma at the age of 25. Starting a relationship while managing a new diagnosis made Kate realize how her love for Matthew far exceeded her fear of the unknown. Kate's motto is "you can't live your life waiting for the other shoe to fall." They express the importance of engaging in everyday activities, not completely focusing on the cancer diagnosis.
Heathly, Happy and Focused Living
video Lois Hoffman
Lois Hoffman: My Myeloma Journey
When Lois Hoffman was diagnosed with myeloma at the age of 70, she was fearful about her future. After deciding to leave her original oncologist, Lois and her husband of over 50 years, partnered with Dr. Craig Hofmeister, a myeloma specialist at Ohio State University. Together they developed a treatment plan that included a clinical trial. Now that she knows her condition is properly managed, Lois now finds herself able to continue living life, happier and more confident.
Live Well with Myeloma
video Cheryl Boyce
Myeloma Patient Advocate
You Can Live... and Live Well...
with Myeloma
13-year survivor Cheryl and husband Russell share their thoughts and advice on living well with myeloma, advocating for yourself as a patient, myeloma in the African American community, and living life to its fullest.
Combination Therapy to Treat Multiple Myeloma
video Dr. Sagar Lonial
Emory University
Using Combination Therapy to Effectively Treat Multiple Myeloma
Dr. Lonial shares his views on combination therapy, the concern of secondary cancers, and the future of myeloma treatments and therapies.
Communicating with Your Health Care Team
video Dr. Craig Hofmeister
Ohio State University
Communicating with Your Health Care Team
Dr. Hofmeister discusses the necessity of frequent communication with your healthcare team to access the best care possible. Myeloma physicians, nurse practitioners, nurses, patients and caregivers are all part of the same healthcare team.
What Happens in the Blood When You Have Myeloma?
video Dr. Sagar Lonial
Emory University
What Happens in the Blood When You Have Myeloma?
Myeloma specialist Dr. Lonial explains what multiple myeloma is, and why patients may have certain symptoms when diagnosed.
Communicating with Your Health Care Team
video Dr. Craig Hofmeister
Ohio State University
The Importance of Connecting with a Myeloma Specialist
Dr. Hofmeister, myeloma physician-researcher, and patient advocates Matt and Lois discuss the importance of seeing a multiple myeloma specialist when diagnosed with this disease. With a complicated range of therapy options newly available for multiple myeloma treatment, it is important to see a doctor who is up-to-date with cutting edge myeloma therapies.
Communicating with Your Health Care Team
video Dr. Craig Hofmeister
Ohio State University
Factors to Consider When Making Myeloma Treatment Decisions
Dr. Hofmeister discusses the importance of creating individualized treatment plans from the “alphabet soup” of treatment options. Treating the “whole patient”, not just the myeloma proteins is the key to success.
Allogenic Transplant for Multiple Myeloma
video Dr. Craig Hofmeister
Ohio State University
Allogenic Transplant for Multiple Myeloma
Dr. Craig Hofmeister describes what allogeneic transplant is, the challenges and the hope to improve this medical procedure moving forward.
Myeloma Treatment Classes
video Dr. Sagar Lonial
Dr. Craig Hofmeister

Myeloma Treatment Classes
Drs. Sagar Lonial and Craig Hofmeister provide a brief overview on the different myeloma treatment classes. The treatment classes include corticosteroids, proteasome inhibitors, IMids, and chemotherapy.
Risk of Another Cancer After Myeloma
video Dr. Craig Hofmeister
Ohio State University
Risk of Another Cancer After Myeloma
Dr. Craig Hofmeister addresses the important question of whether being on powerful drugs for an extended period of time may increase a patient's risk of developing another cancer.
Staging in Myeloma
video Dr. Sagar Lonial
Staging in Myeloma
Dr. Sagar Lonial explains how myeloma staging is different than solid tumors like breast cancer.
Transplant Targeted Therapy
video Dr. Sagar Lonial
Dr. Craig Hofmeister
Transplant or Targeted Therapy
Drs. Craig Hofmeister and Sagar Lonial discuss the “package deal” approach of when to use various treatments such as transplants, non-transplants and combination therapies.
Maintenance Therapy: What Is It and When It Is Needed?
video Dr. Sagar Lonial
Maintenance Therapy: What Is It and When Is It Needed?
Dr. Sagar Lonial discusses the latest thinking about about maintenance therapy following transplant.
Knowing When to Change Treatments
video Dr. Sagar Lonial
Knowing When to Change Treatments
Dr. Sagar Lonial explains the two main reasons for changing treatments in myeloma are toxicity and disease progression.
Long Term Treatment Planning for Multiple Myeloma
video Dr. Sagar Lonial
Dr. Craig Hofmeister
Long Term Treatment Planning for Multiple Myeloma
Drs. Sagar Lonial and Craig Hofmeister discuss the "road map of care" approach and how treatment response expectations have advanced for multiple myeloma.
Recent Developments in Treatment  | As Explained by Researchers and Patients
Research is advancing treatments rapidly and there are exciting research possibilities. Since 2005, survival rates have doubled from 2-4 years to 4-10 years. The next generation of treatments is in development, but funding is desperately needed to move those treatments through the research stage and make them available to patients.
Dr. Craig Hofmeister
video  Changes in Treatment Options
An Exciting Time
in Multiple Myeloma:
Dr. Craig Hofmeister Explains
The treatment landscape for myeloma is changing — for the better! New drugs have been approved, more are on the way and new strides have been made in reducing the side effects of treatment. Dr. Craig Hofmeister, myeloma expert from Ohio State University, talks about his excitement and hope for patients.
Dr. Sagar Lonial
video  Changes in Treatment Options
Living Well & Longer
with Myeloma:
Dr. Sagar Lonial Explains
Dr. Sagar Lonial, Associate Professor at Winship Cancer Institute of Emory University and the Director of Translational Research, B-cell malignancy program as well as Associate Director of Hematology Oncology Fellowship Program, talks about the recent changes in treatment landscape, overall survival and quality of life for myeloma patients.
Cheryl Boyce
video  A Patient's Perpective
Cheryl Boyce: Living Well
with Multiple Myeloma
Cheryl Boyce, powerful patient advocate from Columbus, OH talks about being diagnosed with multiple myeloma after experiencing constant fatigue. Cheryl discusses her journey, treatment and the importance of disease education.
 
 
 
 
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