| Town Meeting | March 16, 2013 | Houston, TX |
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| Living Well with Multiple Myeloma: Experts’ Perspectives on What New Options Mean for You |
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| The Town Meeting in Houston, TX at M.D. Anderson Cancer Center welcomed over 180 patients and caregivers to meet and discuss issues surrounding myeloma with Dr. Robert Orlowski (M.D. Anderson) and Dr. Thomas Martin (UCSF Helen Diller Family Comprehensive Cancer Center San Francisco, California). |
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Our expert panel, including two renowned myeloma specialists, social workers and patients addressed questions throughout the program.
Please visit the Patient Power website to see excerpts from this program and from interviews conducted with the panel.
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| Town Meeting | September 29, 2012 | Columbus, OH |
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| Latest Experts’ Advice on Living Well with Multiple Myeloma |
| Myeloma patients and caregivers came together at a Town Meeting in Columbus, Ohio where they learned more about the latest myeloma news, treatment planning, strategies for managing side effects and more about how to live well with myeloma. |
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Our expert panel, including two renowned myeloma specialists, took your questions throughout the program. Local advocacy groups were on hand to offer support and help patients connect with the myeloma community. |
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Sarah Kaufmann-Fink
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| Happy, Healthy and Focused on Living Life |
| Hear from Sarah Kaufmann-Fink about being diagnosed with Multiple Myeloma at 22 years old. Sarah talks about how being diagnosed with a serious condition helped to frame the way she chooses to live her life moving forward, her priorities and even influenced her career path. |
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Matt and Kate Hare
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| Living with Myeloma as a Young Couple |
| Matthew and his wife Kate openly discuss how they keep a positive attitude by making sure cancer doesn't run their lives. They starting dating shortly after Matthew was diagnosed with myeloma at the age of 25. Starting a relationship while managing a new diagnosis made Kate realize how her love for Matthew far exceeded her fear of the unknown. Kate's motto is "you can't live your life waiting for the other shoe to fall." They express the importance of engaging in everyday activities, not completely focusing on the cancer diagnosis. |
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Lois Hoffman
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| Lois Hoffman: My Myeloma Journey |
| When Lois Hoffman was diagnosed with myeloma at the age of 70, she was fearful about her future. After deciding to leave her original oncologist, Lois and her husband of over 50 years, partnered with Dr. Craig Hofmeister, a myeloma specialist at Ohio State University. Together they developed a treatment plan that included a clinical trial. Now that she knows her condition is properly managed, Lois now finds herself able to continue living life, happier and more confident. |
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Cheryl Boyce
Myeloma Patient Advocate |
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You Can Live... and Live Well...
with Myeloma |
| 13-year survivor Cheryl and husband Russell share their thoughts and advice on living well with myeloma, advocating for yourself as a patient, myeloma in the African American community, and living life to its fullest. |
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Dr. Sagar Lonial
Emory University |
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| Using Combination Therapy to Effectively Treat Multiple Myeloma |
| Dr. Lonial shares his views on combination therapy, the concern of secondary cancers, and the future of myeloma treatments and therapies. |
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Dr. Craig Hofmeister
Ohio State University |
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| Communicating with Your Health Care Team |
| Dr. Hofmeister discusses the necessity of frequent communication with your healthcare team to access the best care possible. Myeloma physicians, nurse practitioners, nurses, patients and caregivers are all part of the same healthcare team. |
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Dr. Sagar Lonial
Emory University |
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| What Happens in the Blood When You Have Myeloma? |
| Myeloma specialist Dr. Lonial explains what multiple myeloma is, and why patients may have certain symptoms when diagnosed. |
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Dr. Craig Hofmeister
Ohio State University |
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| The Importance of Connecting with a Myeloma Specialist |
| Dr. Hofmeister, myeloma physician-researcher, and patient advocates Matt and Lois discuss the importance of seeing a multiple myeloma specialist when diagnosed with this disease. With a complicated range of therapy options newly available for multiple myeloma treatment, it is important to see a doctor who is up-to-date with cutting edge myeloma therapies. |
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Dr. Craig Hofmeister
Ohio State University |
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| Factors to Consider When Making Myeloma Treatment Decisions |
| Dr. Hofmeister discusses the importance of creating individualized treatment plans from the “alphabet soup” of treatment options. Treating the “whole patient”, not just the myeloma proteins is the key to success. |
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Dr. Craig Hofmeister
Ohio State University
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| Allogenic Transplant for Multiple Myeloma |
| Dr. Craig Hofmeister describes what allogeneic transplant is, the challenges and the hope to improve this medical procedure moving forward. |
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Dr. Sagar Lonial
Dr. Craig Hofmeister
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| Myeloma Treatment Classes |
| Drs. Sagar Lonial and Craig Hofmeister provide a brief overview on the different myeloma treatment classes. The treatment classes include corticosteroids, proteasome inhibitors, IMids, and chemotherapy. |
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Dr. Craig Hofmeister
Ohio State University
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| Risk of Another Cancer After Myeloma |
| Dr. Craig Hofmeister addresses the important question of whether being on powerful drugs for an extended period of time may increase a patient's risk of developing another cancer. |
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Dr. Sagar Lonial
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| Staging in Myeloma |
| Dr. Sagar Lonial explains how myeloma staging is different than solid tumors like breast cancer. |
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Dr. Sagar Lonial
Dr. Craig Hofmeister |
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| Transplant or Targeted Therapy |
| Drs. Craig Hofmeister and Sagar Lonial discuss the “package deal” approach of when to use various treatments such as transplants, non-transplants and combination therapies. |
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Dr. Sagar Lonial |
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| Maintenance Therapy: What Is It and When Is It Needed? |
| Dr. Sagar Lonial discusses the latest thinking about about maintenance therapy following transplant. |
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Dr. Sagar Lonial |
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| Knowing When to Change Treatments |
| Dr. Sagar Lonial explains the two main reasons for changing treatments in myeloma are toxicity and disease progression. |
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Dr. Sagar Lonial
Dr. Craig Hofmeister |
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| Long Term Treatment Planning for Multiple Myeloma |
| Drs. Sagar Lonial and Craig Hofmeister discuss the "road map of care" approach and how treatment response expectations have advanced for multiple myeloma. |
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